The Plan

     First we want to thank you for all the messages on the blog (sorry I haven’t answered them all, I’m very technically challenged🥴), on FB, IG and in person, we really appreciate it! 

     Mike started on the oral RET gene therapy/chemo drug called Retevmo (brand name), the generic name is Selpercatinib on Friday August 27th. He takes 2 of the bright blue pills twice a day, every day. He has been feeling pretty good so we pray that continues, although I think he isn’t telling me any of the side effects!?! His blood pressure and pulse have stayed consistently good as well. We are scheduled to go to Mayo on Monday for bloodwork, Echocardiogram, and oncology visit. We did talk with someone from MD Anderson but they won’t just review  all of Mikes records to see if they would have any other suggestions and we don’t want to travel all the way there for them to tell us the same thing, so we will continue at Mayo for now. Also, MD Anderson was the hospital that did the clinical trial with Retevmo so we assume they would suggest the same treatment plan.

     We have been staying busy and enjoying the last days of summer. We have been walking a lot, playing pickleball with family, golfing, relaxing by the pool, reading, and enjoying our kids and grandkids. We are works in progress but we try to remember that life is short so we need to make memories and enjoy every moment! When we hear of people recently diagnosed, or people dying from this terrible disease it just confirms that we can’t take a single day for granted!

     I’ve been asked how long Mike will be on this drug and the answer is until it stops working, and we pray and believe that it works a long, long time! ❤️Regardless of the diagnosis; each and every day that we breathe, we are living with and not dying of cancer. (Unknown)

     Be blessed,

     Paula